Publication at First Faculty of Medicine |
2012
Abstract
The authors describe psycho-socio-economic aspects mapping the quality of life persons who take care of children with HMD encounter. The study evaluated questionnaires obtained from parents of children with metabolic diseases in general and a specific group of parents with children suffering from mucopolysaccharidosis (MPS).
All respondents experienced deteriorated psychic stability, socioeconomic indices and social life of their families. The evaluation of the observed aspects proved to be worse in the HMD group.
On the other hand, the married couples did not differ from the unmarried partners in the area of divorce rate, in comparison with the situation in the Czech Republic.