Charles Explorer logo
🇬🇧

REMUS-Czech national registry of patients with multiple sclerosis

Publication at First Faculty of Medicine |
2016

Abstract

Multiple sclerosis is a serious neurological disorder, which affects young people, and without treatment leads to a significant disability for a substantial proportion of patients. In Czech Republic illness suffer from an estimated 17 to 19 thousand patients, yet we can not cure the disease, thanks to modern, unfortunately, expensive, but we her therapy in an early stage significantly slow.

Evaluation of the effect and safety of the treatment and understanding of others mechanisms of disease can not be without regular collection Data from everyday clinical practice. Essential for the success of this collection is agreement on a common set of data that is collection, and ensuring conditions for the collection of these give.

At the international level in recent times leader MSBase become an international database. In the Czech Republic since. 2013 collects data register Rémusat (FIG. 1) which is profit entity being set up endowment fund IMPULSE in cooperation with a professional company. 30. 6. 2016 They are entered in the registry data more than eight thousand patients treated with expensive biological treatments at 14 centers RS in the Czech Republic (Fig. 2).

List already provides important data demographer bacterial bloom distribution, severity of disease, type of treatment and employability.