Abstrakt
The J Project is based on the vision that Eastern and Western Europe should be an undivided continent in terms of PID patient care. The project has achieved remarkable successes over the past 15 years.
However, important obstacles, e.g., inattention to PID patients in a number of J Project countries and J Daughter Countries, late diagnosis and lack of adequate treatment like immunoglobulin replacement therapy, PID newborn screening, and hematopoietic stem cell transplantation are still existing and the final solution to these problems remains to be demonstrated. It seems thus that the J Project should further search for complex programs until "all PID patients receive personalized immunoglobulin replacement and hematopoietic stem cell transplantation and it should not be restricted by funding or infrastructure constraints" as it stands in the 2014 Antalya Declaration.
Such programs should incorporate awareness, physician education, and improved genetic diagnostics of inborn errors of immunity.