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Informal carers and their experience of participation in the care system

Publication |
2022

Abstract

The chapter aims to name the possibilities and limitations of the participation of informal carers in the long-term care system. We draw on the partial results of a qualitative study of informal carers based on the analysis of in-depth interviews with six carers and a thematic analysis of articles published in the journal Social Work/Social Work and other materials.

The results of both analyses show the possibilities of caregivers' participation in direct care and group participation, specifically advocacy of caregivers' interests through involvement in self-help groups, community planning and advocacy.